2023 · award
Social Impact Award Türkiye — National Public Voting Winner
Selected as a finalist and national public voting winner in the Impact Hub × Anadolu Efes program.
Innovate for the Rare
Science, technology and lived experience — working together for rare and complex health needs.
Innorare brings together rare disease communities, researchers, healthcare professionals, entrepreneurs and institutions to develop accessible, sustainable and meaningful solutions.
Innovate for the Rare
Nearly a decade of work with the rare disease ecosystem
9+
years of rare disease ecosystem experience
30+
patient organizations we have worked with
70+
events and community activities
100+
community members and stakeholders
Why rare matters
Rare diseases are not only clinical challenges. They create social, psychological, economic and technological needs that today's health systems are not designed to meet.
300M+
people worldwide live with a rare disease
~7,000
known rare diseases, 95% without a treatment
~4 years
average time to a correct diagnosis
70%
of rare conditions begin in childhood
Our approach
Listen. Connect. Develop. A simple methodology for a complex ecosystem.
01
Listen
We begin with lived experience, real needs and stakeholder insight — not assumptions.
02
Connect
We bring together communities, science, healthcare, entrepreneurship and institutions.
03
Develop
We turn knowledge into research, technologies, projects and sustainable collaborations.
What we do
R&D and Project Support
Applied research and product development around unmet needs shared across many rare conditions.
Learn moreNetwork and Outreach
Building bridges between patient communities, clinicians, students, researchers and institutions.
Learn moreInternational Collaboration
Working with global rare disease programs, accelerators and academic partners.
Learn moreFeatured initiatives
R&D
Recather
An investigational medical-device project developing an automated dual-phase disinfection approach for clean intermittent catheter (CIC) users. Currently in research, validation and preclinical development.
Explore Recather
Community
Rare500
A pilot-stage, privacy-first community and digital health initiative designed to connect rare disease communities, knowledge and relevant stakeholders — without ever replacing medical care.
Explore Rare500
An ecosystem, not a single stakeholder
Rare challenges touch many lives at once. Innorare works at the intersection of these communities.
People with rare diseases & families
Patient organizations & advocates
Researchers & universities
Healthcare professionals
Students & young researchers
Medtech, biotech & pharma
Entrepreneurs & investors
Public institutions
International innovation orgs
Selected milestones
A short selection of programs, events and recognitions from Innorare's journey.
2023 · event
ALS Hackathon
A two-day hackathon focused on ALS, bringing students, clinicians and engineers together around real needs.
2024 · program
TÜBİTAK BİGG 1512 — Recather
Recather awarded TÜBİTAK BİGG 1512 support; Demo Day completed at Acıbadem TEKMER, Phase 2 preclinical work initiated.
2024 · award
Boğaziçi BRIGHT — 2nd Place
Recather secured validation-phase financial support at the BRIGHT Demo Day for cleanroom experiments, validation and preclinical work.
2024 · event
Rare Summit '24
200+ participants and 23 organizations gathered at Acıbadem University for a national rare disease summit.
Ecosystem & collaborators
A partial view of organizations we have collaborated with across research, community and innovation programs.
Nadir Hastalıklar Federasyonu
Albinizm Derneği
PKU Aile Derneği
Tay-Sachs ve Sandhoff Yardımlaşma Derneği
Acıbadem TEKMER
TÜBİTAK BİGG
Impact Hub İstanbul
Social Impact Award Türkiye
Care4Rare
Boğaziçi BRIGHT
NSPIRE — Doorways to Innovative Social Entrepreneurship
Medipera Campus
3dörtgen
nanowiss
YetGen — Yetkin Gençler
TEB
Rare challenges need connected solutions.
Let's bring together knowledge, experience and technology to create meaningful health impact.