Our Work
Three connected areas of activity, one shared methodology.
R&D and Project Support
Applied research and product development, from early concept to preclinical work, focused on needs shared across many rare conditions.
Network and Outreach
Long-term relationships with patient organizations, clinicians, students, universities and public institutions.
International Collaboration
Programs and partnerships with international rare disease and innovation organizations.
Featured initiatives
Recather
An investigational medical-device project developing an automated dual-phase disinfection approach for clean intermittent catheter (CIC) users. Currently in research, validation and preclinical development.
Rare500
A pilot-stage, privacy-first community and digital health initiative designed to connect rare disease communities, knowledge and relevant stakeholders — without ever replacing medical care.