About Innorare
A science-based, human-centered organization working at the intersection of health technology and social impact for rare and complex health needs.
Listen. Connect. Develop.
A methodology, not a slogan. It shapes how we choose projects, how we work with stakeholders and how we measure impact.
Innorare's story begins with years of voluntary work alongside people living with rare diseases and their organizations. Over nearly a decade, that work grew from awareness events and community projects into a structured health-technology organization — while staying grounded in the same principle: solutions should start with the people who experience the problem.
To build a transformative, community-driven health ecosystem that addresses the needs of individuals living with rare and complex health conditions, and enables their full participation in life through collaboration with all relevant stakeholders and innovative health technologies.
A world where every person living with a rare or complex health condition can access personalized, data-informed solutions that support sustainable long-term health and well-being.
Values
Scientific integrity
Evidence over hype. We are careful about what we claim, and clear about what is still being tested.
Human-centered
We speak with people living with rare diseases, not only about them.
Community-driven
Our work is shaped through close collaboration with patients, families and organizations.
Sustainable impact
We design for the long term — clinically, socially, economically and environmentally.
Founder team
Innorare is led by a small founding team with complementary backgrounds in medicine, biomedical engineering and clinical psychology.
Clinical Psychologist. Leads operations and public relations.
MD and Biomedical Engineer. Leads R&D and strategy.